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Advocacy. Education. Awareness.

General Resources

Down Syndrome Affiliates in Action (DSAIA) - The mission of Affiliates in Action is to support and advance the growth and service capabilities of the local and regional Down syndrome organizations we serve, to be the conduit of value-driven training, programs, best practices and support for our members.

Global Down Syndrome Foundation – The mission of the Global Down Syndrome Foundation is to significantly improve the lives of people with Down syndrome through research, medical care, education and advocacy.

LuMind Foundation - The mission of the LuMind Foundation is to stimulate biomedical research that will accelerate the development of treatments to significantly improve cognition, including memory, learning and speech, for individuals with Down syndrome.

National Down Syndrome Congress (NDSC) - The mission of the National Down Syndrome Congress is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome.

National Down Syndrome Society (NDSS) - The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome.

Nemours/AI duPont Down Syndrome Clinic - The goal of the Down Syndrome Clinic is to maximize a child’s potential by providing coordinated care from a variety of medical and therapeutic specialists all in one place.

Connecting the Dots, A Guide to Finding Services for Children and Adults with Disabilities and Special Health Care Needs in Delaware- a online printable PDF file that contains vital information for families.

Health Care Information for Families of Children with Down Syndrome, A healthcare guide, broken down by age, that provides valuable information pertaining to different age groups- a online printable PDF file that contains vital resources for families from the American Academy of Pediatrics.